Patient Engagement Liaison – Mid-Atlantic/Ohio Valley

November 9, 2026

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Job Description:

Engage with the rare disease community, including patient advocacy organizations, to understand the rare experience and incorporate insights throughout PTC
Collaborate internally with PTC teams to identify, educate, build, and leverage relationships with people living with rare diseases, caregivers, and Patient Advocacy Organizations
Assist communities with resources to help remove access barriers and gain coverage for marketed products, when appropriate
Build patient advocacy and community relationships for marketed product disease states and products in development, consistent with applicable regulations
Work cross-functionally with medical, communications, commercial, legal, and compliance colleagues to follow country-specific guidelines, standards, and regulations
Connect families to Patient Advocacy Organizations and resources
Develop, plan, and execute educational programs for people living with rare diseases and their caregivers
Support Patient Advocacy Organizations through shared interests in education and programs
Work with the rare disease community to advocate for access to care and therapies

Requirements:

Bachelor’s degree
5 years of experience in pharmaceutical, biotechnology, advocacy, medical, or related field
Experience supporting people with rare diseases, their caregivers and advocacy organizations
An empathetic and compassionate person that can relate to rare families and their challenges
Understanding of healthcare, specialty pharmacy, pharma, and biotech industry
Maintenance of all compliance rules and confidentiality
Demonstrated leadership working as part of cross functional teams
History of building and maintaining strong relationships, internally and externally
Proficiency with Microsoft Office suite and Zoom
Excellent verbal and written communication, as well as presentation skills, including the ability to explain technical information to non-technical audiences
Ability to work independently and collaboratively in a fast-paced matrixed team environment consisting of internal and external members
An analytical thinker with excellent critical thinking skills and the ability to adapt to changing priorities and deadlines
Excellent planning, organization and time management skills
Ability to enter data quickly, confidentially and accurately into CRM
Valid driver’s license and clean driving record
Up to 75% domestic travel, including overnights, weekends and evening responsibilities as needed; potential for international travel as needed

Benefits:

Short- and long-term incentives
Medical plan
Dental plan
Vision plan
Retirement savings plan

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